Also called: Lou Gehrig's Disease
Website for ALS411
This information was designed to help children and teens to understand and to cope when one of their family members is diagnosed with ALS. The website includes personal stories and other resources to help children deal with the disease of a loved one.
Subject Headings Amyotrophic Lateral Sclerosis
Published by ALS Society of Canada (2008) CAN
Last modified on 06/20/2016
Website for ALS Fact Sheets
A list of fact sheet that cover the ALS related topics, including physical, emotional and cognitive change, pain management, complementary therapies and more.
Published by ALS Society of Alberta (2017) CAN
Last modified on 03/29/2017
Pdf document for A Manual for People Living with ALS
The purpose of this manual is to provide information and helpful hints to individuals recently diagnosed with ALS and their families. The manual covers many aspects of ALS management and the necessary adaptations that make coping with the progression of ALS easier. The hope is that reading this manual will contribute to one's strength and encouragement.
Published by ALS Society of Canada ([2009]) CAN
Last modified on 04/03/2017
Pdf document for Coping with Grief: Strategies for People Living with ALS
This publication presents strategies for coping with illness and dealing with associated grief when facing Amyotrophic Lateral Sclerosis (ALS). This resource covers all stages of the grieving process, and offers information about what to expect, and how others (including children) can be supported.
Subject Headings Amyotrophic Lateral Sclerosis, Grief
Published by Amyotrophic Lateral Sclerosis Society of Canada ([2016]) CAN
Website for ALS Canada
ALS Society is supporting Canadians living with ALS (amyotrophic lateral sclerosis), and investing in research for the future, so ALS will be a treatable, not terminal disease. It advocates federally, provincially and locally on behalf of people and their families for better government support and access within the healthcare system.
Subject Headings Amyotrophic Lateral Sclerosis, Patient Advocacy
Published by Amyotrophic Lateral Sclerosis Society of Canada (ALS) (2016) CAN
Last modified on 06/21/2016
Website for ALS Association
The ALS Association is the only US national, non-profit organization fighting Lou Gehrig’s Disease by supporting research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships. Their website provides information about ALS, genetic testing in this area and resources for people living with ALS and for their caregivers.
Published by ALS Association (2016) CAN
Website for Living with ALS Guidebook
This is a comprehensive list of publications and videos that cover many aspects of living with ALS. The guidebook is divided in to more specific topics which include information about ALS, medical treatment, mobility issues, symptom management, advance directives and caregiver care.
Published by ALS Association Greater Philadelphia Chapter (2017) USA
Last modified on 04/01/2019
Website for Amyotrophic Lateral Sclerosis
This page provides general overview of ALS, starting with definition, symptoms, causes and diagnosis through available treatments, research developments and clinical trials.
Published by National Institute of Neurological Disorders and Stroke (2017) USA
Website for Amyotrophic Lateral Sclerosis (ALS) Fact Sheet
This fact sheet explains the nature of ALS and its possible causes. It also describes symptoms, diagnosis, available treatments and the latest research efforts in understanding this disease.