Amyotrophic Lateral Sclerosis

This information was designed to help children and teens to understand and to cope when one of their family members is diagnosed with ALS. The website includes personal stories and other resources to help children deal with the disease of a loved one.

A list of fact sheet that cover the ALS related topics, including physical, emotional and cognitive change, pain management, complementary therapies and more.

The purpose of this manual is to provide information and helpful hints to individuals recently diagnosed with ALS and their families. The manual covers many aspects of ALS management and the necessary adaptations that make coping with the progression of ALS easier.  The hope is that reading this manual will contribute to one's strength and encouragement.

This publication presents strategies for coping with illness and dealing with associated grief when facing Amyotrophic Lateral Sclerosis (ALS). This resource covers all stages of the grieving process, and offers information about what to expect, and how others (including children) can be supported. 

ALS Society is supporting Canadians living with ALS (amyotrophic lateral sclerosis), and investing in research for the future, so ALS will be a treatable, not terminal disease. It advocates federally, provincially and locally on behalf of people and their families for better government support and access within the healthcare system.

 The ALS Association is the only US national, non-profit organization fighting Lou Gehrig’s Disease by supporting research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships. Their website provides information about ALS, genetic testing in this area and resources for people living with ALS and for their caregivers.

This is a comprehensive list of publications and videos that cover many aspects of living with ALS. The guidebook is divided in to more specific topics which include information about ALS, medical treatment, mobility issues, symptom management, advance directives and caregiver care.

This page provides general overview of ALS, starting with definition, symptoms, causes and diagnosis through available treatments, research developments and clinical trials.

This fact sheet explains the nature of ALS and its possible causes. It also describes symptoms, diagnosis, available treatments and the latest research efforts in understanding this disease.